Cycle 2 Week 9: Cancer is doing weird things to my body

In mid-Dec I was having headaches that wouldn’t go away so I went to my hospital’s Urgent Care for an assessment. A CT Scan didn’t reveal lesions or tumours. While waiting to see an ENT (Ear Nose Throat) Resident, I had a period of uncontrollable chills and shaking, that I attributed to my body being cold. The ENT Resident examined my nasal passage and found I have chronic sinusitis due to my cancer, so he prescribed a nasal spray to repair it. He also said that the random lumps in my mouth were benign.

Later that week when I arrived for chemo treatment I was coughing and had a fever of 39.1C, so I was isolated and various tests were taken. Chemo treatment was stopped for two weeks and I was placed on antibiotics. Results from the CDC revealed that the uncontrollable chills, headaches, and fever were a precursor for the Adenovirus, a virus that attacks people with immune suppressed systems. One of my pre-chemo drugs is actually an immune suppressor. Thankfully after a couple of weeks I had fully recovered from the Adenovirus and my chemo treatment continued.

My Dec blood test results were pretty meaningless (jumped to between 47 and 48 from between 40 and 42 in Nov) as it was based only on my first chemo treatment which was Cycle 1 Week 1. Cycle 1 Week 2 and Cycle 1 Week 3 were cancelled due to the Adenovirus. I remain confident that January’s blood test results (based on usual 4) will show a drop in my cancer levels.

Overall, I’m really focused on listening to my body, eating healthy, and relaxing as much as possible to help my chemo be as effective as possible. Bed has been my friend recently.

My mobility is compromised due to the lesions in my pelvis, so walking up stairs is no longer possible, without significant difficulty.

I really don’t stress about the various things going on with my body. I have an incurable cancer and I’m alive, so I’m thankful for that.

I take each day as it comes and focus on being calm and happy.

Cycle 2 Week 9: Cancer is doing weird things to my bodySelf-portrait: Rest is key for my health

I have multiple myeloma and anemia, a rare cancer of the immune system. Multiple myeloma affects the plasma cells, a type of immune cell that produces antibodies to fight infection. These plasma cells are found in the bone marrow. As a blood cancer, it is incurable, but treatable.

From December 2019 I’ve been on Darzalex (Dartumumab), an IV chemo with Velcade (Bortezomib), a chemo injection + dexamethasone.

Steveston - Canada GeeseMay 2014: Steveston – Canada Geese

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Oct blood test results: Cancer levels spiked, positivity levels remain unchanged

My Oct blood test results show my cancer levels spiked to 29 from 21 in late September.

I spent about 5 minutes trying different self-portrait ideas, before I was too fatigued to continue and had to leave to rest at home. Although my disease causes chronic fatigue, it has felt more pronounced, like having a full brain, making thinking and physical activities much more challenging.

At this rate, I expect that my November blood test results will also increase and that in December chemo treatment will begin again. Not going to panic. Just staying calm and positive.

Happy November!
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M protein (g/L) (if 0, then no cancer detected)
Oct = 29
Late Sept = 21
Early Sept = 16
Aug = 13
July = 6
June = 5
May = between 3 and 4 (post-chemo)
Apr = 3
Mar = between 1 and 2
Feb = 3
Jan 2019 = between 5 and 6
Dec = between 5 and 6
Nov = 11
Late Oct = 27 (started chemo)
Early Oct 2018 = 48

Oct blood test results: Cancer levels spiked, positivity levels remain unchanged
Self-portrait: A morning stroll through the park


I have multiple myeloma and anemia, a rare cancer of the immune system. Multiple myeloma affects the plasma cells, a type of immune cell that produces antibodies to fight infection. These plasma cells are found in the bone marrow. As a blood cancer, it is incurable, but treatable.

From mid-October 2018 to late-May 2019, I was treated with Kyprolis (carfilzomib), an IV chemo, Cyclophosphamide, and dexamethasone.

English Bay - VancouverJune 2014: English Bay, Vancouver

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Late Sept blood test results: Cancer levels jumped, positivity levels remain unchanged

My late Sept blood test results show my cancer levels jumped to 21 from 16. Based on my current progress, I expect to begin chemo in late 2019 or early 2020.

It will be challenging on my body and mind, but I remain hopeful for low stable levels for a long time.

Although I’m easily fatigued and mentally weak, I feel fortunate I can appreciate the changing Autumn colours in my city.

Have a great day!

M protein (g/L) (if 0, then no cancer detected)
Late Sept = 21
Early Sept = 16
Aug = 13
July = 6
June = 5
May = between 3 and 4
Apr = 3
Mar = between 1 and 2
Feb = 3
Jan = between 5 and 6
Dec = between 5 and 6
Nov = 11
Late Oct = 27 (started chemo)
Early Oct = 48

Self-portrait:
Early morning in Quilchena Park, Vancouver
Late Sept blood test results: Cancer levels jumped, positivity levels remain unchanged

I have multiple myeloma and anemia, a rare cancer of the immune system. Multiple myeloma affects the plasma cells, a type of immune cell that produces antibodies to fight infection. These plasma cells are found in the bone marrow. As a blood cancer, it is incurable, but treatable.

From mid-October to late-May, I was treated with Kyprolis (carfilzomib), an IV chemo, Cyclophosphamide, and dexamethasone.

Sixth and WillowJune 2014: Sixth and Willow

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Early Sept blood test results: Cancer levels increased, planning for early 2020 chemo

My September blood test results show my cancer levels have risen to 16 from 13. Although this is only a small increase, I’m trending in the wrong direction as my cancer continues to affect my physical and mental abilities. So, I’m expecting early 2020 chemo, and focused on being mentally prepared, when the time comes.

Conversations are problematic as simple sentences can come out wrong. I’m also very clumsy and find that I will knock things over or run into walls. This is expected though as my cancer levels rise and I get closer to chemo treatment, easy things become more difficult and difficult things are super challenging.

Instead, I’m really focused on remaining calm, finding inner peace, and experiencing happiness within. I’m conserving my energy and prepare my body and mind for the long journey ahead through healthy eating, reading, and quiet time.

My next treatment will be pretty intense, as I’ll be on IV and oral chemo indefinitely. However, I remain optimistic that I will be able to handle any adverse side effects and that treatment will keep my cancer levels low and stable.

Staying positive – Happy Autumn!

M protein (g/L) (if 0, then no cancer detected)
Early Sept = 16
Aug = 13
July = 6
June = 5
May = between 3 and 4
Apr = 3
Mar = between 1 and 2
Feb = 3
Jan = between 5 and 6
Dec = between 5 and 6
Nov = 11
Late Oct = 27 (started chemo)
Early Oct = 48

Self-portrait:
Afternoon wanderings in Queen Elizabeth Park

Early Sept blood test results: Cancer levels increased, expecting chemo before Spring

I have multiple myeloma and anemia, a rare cancer of the immune system. Multiple myeloma affects the plasma cells, a type of immune cell that produces antibodies to fight infection. These plasma cells are found in the bone marrow. As a blood cancer, it is incurable, but treatable.

From mid-October to late-May, I was treated with Kyprolis (carfilzomib), an IV chemo, Cyclophosphamide, and dexamethasone.

Lynn Creek @ Varley Trail - Lynn Headwaters Regional ParkLynn Headwaters Regional Park

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August blood test results: Cancer levels doubled, feeling a bit nervous

I’d been feeling more fatigued than usual leading up to my blood test – chronic fatigue is one of the symptoms of multiple myeloma and I wondered whether my cancer levels were still reasonably stable. Unfortunately, my August blood test results earlier this month showed my cancer levels doubled from 6 in July to 13.

Goodbye single digits, thanks for the memories.

I remain hopeful that my September results won’t spike again, but I’m also mentally prepared if I need to restart chemo again in the near future. I really am happy to have a break from chemo, the last chemo really affected my mental and physical abilities.

I’m not letting cancer get me down. No time for stress. Remaining positive about life.

M protein (g/L) (if 0, then no cancer detected)
Aug = 13
July = 6
June = 5
May = between 3 and 4
Apr = 3
Mar = between 1 and 2
Feb = 3
Jan = between 5 and 6
Dec = between 5 and 6
Nov = 11
Late Oct = 27 (started chemo)
Early Oct = 48

Self-portrait:
Sunday morning, I went to Queen Elizabeth Park for some quiet time.

August blood test results: Cancer levels doubled, feeling a bit nervous

I have multiple myeloma and anemia, a rare cancer of the immune system. Multiple myeloma affects the plasma cells, a type of immune cell that produces antibodies to fight infection. These plasma cells are found in the bone marrow. As a blood cancer, it is incurable, but treatable.

From mid-October to late-May, I was treated with Kyprolis (carfilzomib), an IV chemo, Cyclophosphamide, and dexamethasone.

End of the day on Granville IslandMay 2014: Granville Island

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