Week 58 chemo complete: Hello world

Week 55 chemo complete: Cancer levels dropped again!

Last week, more about I went in for my monthly big blood test for February to determine what my Hematology profile is (how my body responds overall to my chemo treatment) and learn what my Serum Proteins (Electrophoresis & Immunoglobulins) are, doctor which are my cancer levels. I drank lots of water beforehand and the technician was able to draw blood out of my right arm as it wouldn’t work out of my left arm.

My general cancer marker (igG) remained stable and my specific cancer marker (Beta 2 Globulin) decreased. This means there is less myeloma/cancer in my blood stream (as noted by the Beta 2 measure).

Serum Proteins (Electrophoresis & Immunoglobulins) (g/L)
Date Albumin Beta Globulin 2 Gamma Globulin igG igA igM
Reference Range 34.0-53.0 1.8 – 4.8 5.1 – 15.0 6.7 – 15.2 .70 – 4.00 .40 – 2.30
Feb 36 5.9 5.1 10.4 .84 .46
Jan 36 6.5 4.9 10.1 .75 .31
Dec 43.6 6.4 5.1 11.6 .78 .37
Nov 30 43.3 7.4 5.4 11.2 .84 .49
Nov 2 45 7.7 4.8 12.5 1.00 .68
Oct 48.5 9.0 4.0 13.3 .82 .43
Sept 44.1 9.2 3.2 12.9 .66 .31
Aug 47.7 10.7 3.0 14.8 .62 .32
July 45.8 11.4 3.6 15.7 .56 .37
June 41.2 15.2 3.9 16.5 .49 .40
May 42 17.2 2.5 18.7 .28 .33
Apr 44.4 19.2 1.5 21.4 .29 .41
Mar 39.1 27.1 2.6 27.5 .26 .50
Feb 38.9 33.9 3.0 36.1 .33 .53
Jan 39.3 30.6 3.7 33.4 .29 .22

My Hematology profile (how my body responds overall to being on treatment) also remains great.

Hematology Profile
Date WBC Hemoglobin Platelet Count Neutrophils
Reference Range 4.0 – 11.0 135 – 170 150 – 400 2.0 – 8.0
Feb 7.5 130 336 6.4
Jan 25 8.3 129 335 5.7
Jan 11 4.9 126 335 5.7
Dec 15.6 129 356 11.2
Nov 30 8.8 133 416 7.0
Nov 2 5.7 136 447 4.7
Nov 8.1 137 387 5.9
Oct 10.5 139 329 8.8
Sept 5.3 130 363 4.4
Sept 13.7 122 304 5.2
Aug 6.1 130 378 4.9
Aug 12.0 133 329 8.3
July 12.8 131 302 9.47
July 4.8 123 386 3.8
June 10.6 124 281 8.0
June 6.5 122 439 4.7
May 12.4 118 271 8.9
May 10.0 118 320 5.2
Apr 12.5 123 297 9.8
Apr 7.6 113 357 3.9
Mar 7.0 133 247 5.6
Mar 6.8 127 467 5.2
Feb 5.5 133 191 4.6
Jan 4.4 129 206 2.3

To recap: On Sunday, February 28th, I completed Cycle 14 Week 3. I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex).

Weekly chemo-inspired self-portraits can be viewed in my flickr album.

Steveston - Britannia Shipyards

Week 56 chemo complete: Cherry blossoms are everywhere

There is something magical seeing the Cherry blossoms in the city. Spring is such a beautiful time to walk around Vancouver. On Kits Beach, order
I took a moment to create a happy memory.

I’m feeling great and remain focused on stress-free living. Staying positive everyday!

To recap: On Sunday, March 6th, I completed Cycle 14 Week 4. I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex).

Weekly chemo-inspired self-portraits can be viewed in my flickr album.

Riding to sunsetRiding to sunset
Week 56 chemo complete: Cherry blossoms are everywhere

There is something magical seeing the Cherry blossoms in the city. Spring is such a beautiful time to walk around Vancouver. On Kits Beach, order
I took a moment to create a happy memory.

I’m feeling great and remain focused on stress-free living. Staying positive everyday!

To recap: On Sunday, March 6th, I completed Cycle 14 Week 4. I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex).

Weekly chemo-inspired self-portraits can be viewed in my flickr album.

Riding to sunsetRiding to sunset
Week 57 chemo complete: Stanley Park in Black & White

Yesterday it was a beautiful day, malady
although a bit overcast. I decided it was a perfect opportunity to walk around Stanley Park from Lost Lagoon to Second Beach. It felt refreshing to walk around water, information pills
to see tall trees, information pills
and watch swans and geese enjoying themselves in their natural habitat.

This week’s self-portrait is black and white as I wanted to try something new. In addition, I enjoy taking multiplicity self-portraits (more than 1), as they are always fun to create.

I’m feeling happy and staying positive each day!

To recap: On Sunday, March 6th, I completed Cycle 14 Week 4. I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex).

Weekly chemo-inspired self-portraits can be viewed in my flickr album.

Sun sets on Granville IslandSunset on Granville Island
(photo)

Yesterday it was a beautiful day,
although a bit overcast. I decided it was a perfect opportunity to walk around Stanley Park from Lost Lagoon to Second Beach. It felt refreshing to walk around water, sick
to see tall trees, and watch swans and geese enjoying themselves in their natural habitat.

This week’s self-portrait is black and white as I wanted to try something new. In addition, I enjoy taking multiplicity self-portraits (more than 1), as they are always fun to create.

I’m feeling happy and staying positive each day!

To recap: On Sunday, March 6th, I completed Cycle 14 Week 4. I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex).

Weekly chemo-inspired self-portraits can be viewed in my flickr album.

Week 57 chemo complete: Stanley Park in Black & White

Yesterday it was a beautiful day, page
although a bit overcast. I decided it was a perfect opportunity to walk around Stanley Park from Lost Lagoon to Second Beach. It felt refreshing to walk around water, to see tall trees, and watch swans and geese enjoying themselves in their natural habitat.

This week’s self-portrait is black and white as I wanted to try something new. In addition, I enjoy taking multiplicity self-portraits (more than 1), as they are always fun to create.

I’m feeling happy and staying positive each day!

To recap: On Sunday, March 6th, I completed Cycle 14 Week 4. I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex).

Weekly chemo-inspired self-portraits can be viewed in my flickr album.

Sun sets on Granville IslandSunset on Granville Island
Week 58 chemo complete: Hello World

On a beautiful sunny day I looked out my door and felt very happy that Spring is here. During my walks in the neighbourhood I enjoy listening to birds chirping and see flowers welcoming the new season. I’m moving on and looking for a new room in Vancouver from May 1st. I’m a non-smoker, no rx
quiet, check
and friendly. I have a limited budget, so I’m looking for something reasonably priced. It should preferably be along the Canada Line.

If you can help, please contact me: internet at fadetoplay (dot) com. Have a great day!

To recap: On Sunday, March 20th, I completed Cycle 15 Week 2. I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. Since February 9th 2015, I have been on Pomalyst and dexamethasone chemo treatment (Pom/dex).

Weekly chemo-inspired self-portraits can be viewed in my flickr album.

The end of the trackEnd of the track

About tyfn

From December 2019 I've been on Darzalex (daratumumab) IV chemo with Velcade (Bortezomib) injection chemo + dexamethasone. Have Multiple Myeloma + anemia, a rare incurable cancer of the immune system. Life goal: To spread awareness about Multiple Myeloma through my self-portraits. UBC MSc Grad.
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4 Responses to Week 58 chemo complete: Hello world

  1. simone Williams says:

    When were you diagnosed? For a person who has just being diagnosed what advise can you give…did you have to do a stem cell transplant? if not, how have your treatment work so far ….remission???

    Rgds
    Sim

    • tyfn says:

      I have had chemo for a while. I had a stem cell transplant after diagnosis which led to partial remission and have had a variety of chemo treatments over the years. I had Velcade from Feb 2013-Nov 2013. Was in complete remission for first time in my life from Nov 2013 – July 2014. I am now on Pomalyst and I’m responding well to treatment as my cancer levels have dropped. However, I’m on this chemo indefinitely (in best case scenario, expect to be on it 5 years from now), until it stops working, meaning that my cancer levels increase while on the chemo. I don’t consider myself to be in remission. My opinion is that remission = no cancer detected in blood stream + not on chemo treatment. Others differ in what remission means.

      For someone just being diagnosed, I would recommend doing as much research as possible about the disease. Connect with organizations in your country/state so you know what the disease is about and reach out to people so that you can get advice when things aren’t going well. Ask your specialist lots of questions. See if you can get your blood test results online so that you aren’t stressed in the waiting room at the specialist appointment wondering how you’re doing. I would join multiple myeloma groups on Facebook and twitter. Find people that discuss myeloma to follow and learn from such as the International Myeloma Foundation and Multiple Myeloma Research Foundation.

      You can decide how public or private you want to be with your disease. Some people like to be private, others will start blogging, wearing Cancer t-shirts, and announce it to the world on a daily basis. Just do what works for you and you can always change whenever you want. I would also figure out who the people are in your circle of friends that you can rely on for help when needed. I’m single and I’m my own caregiver so I have to do everything in life myself. Most people have a husband/wife/bf/kids etc to be their caregiver. So it is best to figure out how much care you can expect from others, so that when it is needed you can reach out for help – especially in an emergency.

      Something I would recommend is a book by Jane McGonigal called SuperBetter. She is a games designer and a personal friend and her SuperBetter approach helped me during a period of time I was in-between chemo treatments.

      For someone just diagnosed they need to remain calm and try to live life as stress-free as possible. They need to stay strong and try and remain positive as they go through treatment and hopeful remission for an extended period of their life.

  2. kin says:

    Congrats on your success with this treatment.

    I am a newly diagnosed patient in Jamaica…we haven’t had much of this type of illness. I was diagnosed March 2016 with LgG kappa light chain…which i don’t much about…

    I trying to find a Myeloma specialist for second opinion…is there anyone that you can recommend?

    I heard its best to see a doctor who treats many patients of this nature….

    kind regds
    Reply

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