Living with multiple myeloma: Future undefined for flying adventures

story on Flickr”>Living with multiple myeloma: Seeking flying adventuresSeeking flying adventures

This photograph is part of my Future Undefined series. Chemo treatment can carry with it mental, physical, or financial constraints, which limit the likelihood of travel adventures happening. However, something that seems difficult to imagine happening today, could in fact become a reality tomorrow. I just have to believe.

My future is undefined!

My first cycle of Pomalyst chemo treatment for my multiple myeloma ended on Sunday. Last week was chemo-free to allow my body time to recuperate. I’m thankful that these first four weeks did not produce any major side effects. This was such a contrast from the bedridden pain I experienced during my 2013 chemo on Velcade. My second week of chemo ended with an intense weekend of fatigue and acquired a viral eye infection found to be unrelated to my treatment to end my third. My experiences with hiccups, a side effect of the steroids I’m on (dexamethasone), have dramatically decreased through Cycle 1.

I’m hopeful that I will respond well to treatment. I love photography and use self-portraits to help me cope with multiple myeloma. Taking pictures brings me happiness.

To recap: I have Multiple Myeloma and anemia, a rare blood cancer. It is incurable, but treatable. From February to November 2013, I received Velcade chemo through weekly in-hospital injections as an outpatient. From February 9th 2015, I am on Pomalyst and dexamethasone chemo treatment (Pom/dex).

UBC Wreck BeachApril 2014: UBC Wreck Beach

About tyfn

From December 2019 I've been on Darzalex (daratumumab) IV chemo with Velcade (Bortezomib) injection chemo + dexamethasone. Have Multiple Myeloma + anemia, a rare incurable cancer of the immune system. Life goal: To spread awareness about Multiple Myeloma through my self-portraits. UBC MSc Grad.
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2 Responses to Living with multiple myeloma: Future undefined for flying adventures

  1. Carolee888 says:

    Sending you hopes and best wishes for good results from your chemo treatments.

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