Cancer Radiology Appointment set: Thoughts via text and soundcloud

search on Flickr” href=””>Where does the road lead?What lies around the corner?

Soundcloud of my thoughts

When you have cancer, approved one of the big issues surrounding chemo treatment are the unknown side effects that will occur that seem to come out of left field. It can put challenges on working, socialising, and creating a familiar routine. Each time I’ve had chemo I have major side effects that have had a significant effect on my health and well-being. The first time I had chemo treatment (bone marrow transplant), I nearly got glaucoma. The third time, I came down with TTP, a rare blood disorder, and spent 12 days recovering in hospital. This time, the day after my chemo treatment began I developed severe back/side pain and I was bedridden for a month. This most recent negative experience I documented previously in a blogpost. A subsequent CT scan, showed that because I have multiple myeloma, cancer cells had spread to my thoracic spine, specifically the T7 and T9 vertebrae, meaning that radiation of that area would be necessary.

Today, I received a call from the Cancer Radiology department setting up an appointment for next week. They asked me a number of questions such as medication I’m on and who my next of kin was. Although it is suppose to be a fairly safe procedure, it still is an operation with certain risks. It will take about 3 hours in total and as I’m taking the bus (can’t drive due to a previous stroke caused by my TTP) I won’t need to worry about how I’m getting back to my place afterwards.

I’m staying positive that this radiation treatment will prevent cancer cells appearing on my thoracic spine ever again and make back or side pain due to my multiple myeloma less likely.

About tyfn

From December 2019 I've been on Darzalex (daratumumab) IV chemo with Velcade (Bortezomib) injection chemo + dexamethasone. Have Multiple Myeloma + anemia, a rare incurable cancer of the immune system. Life goal: To spread awareness about Multiple Myeloma through my self-portraits. UBC MSc Grad.
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