Velcade Chemo Treatment Cycle 4 Week 1: In Photos

I receive 2 chemo injections (140ml and 150ml) every 4 weeks in the hospital then 1 week off.

I receive 2 needles (140ml and 150ml) every 4 weeks in the hospital then 1 week off.

Cycle 4 Week 1 of Velcade chemotherapy is done – Week 16 in total. I am living with multiple myeloma (my story) and these 6 cycles of chemo treatment are necessary to lower my cancer levels. I’m focused on keeping active and happy through my self-portraits at UBC. I’m also using photography to educate others about my journey living with a terminal illness and through digital storytelling I’m sharing the daily challenges I face as an out-patient on chemo medication (daily pills, weekly pills, and weekly hospital injections).

Recently, I have been napping more. I don’t think it is anything serious, but just due to so much of a toxic substance being in my system right now combined with the added weight I’m carrying. Treatment is a bit of a burden on my life, but I’m focused on positive thinking and healthy living.

Waiting for my Velcade chemoWaiting for my Chemotherapy

As I take dexamethasone (steroid) and cyclophosphamide (chemotherapy) each week (10 pills with breakfast), I take a self-portrait that illustrates the particular week of treatment it is. Not only is it my 1st week of Cycle 4, it is my 16th week in total. Each cycle is five weeks long and I will have 6 cycles in total.

Velcade Chemo Treatment: Cycle 4 Week 116th Week of chemo treatment

I took this photo earlier in the week. It was in the afternoon and I went to one of my favourite forests on campus to relax and photoshoot. I absolutely love the nature at UBC. During these dark times I have found it helpful for my health to focus on the happy moments that brighten my day.

Sunlight in the forestSunlight through the trees

You can view my self-portrait project on flickr.

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Cycle 3 Chemo Treatment Complete: Halfway There!

SummertimeJune 1st: Summertime

I am halfway through my Velcade chemo treatment for my multiple myeloma (blood cancer). Three cycles are complete and three more remain at five weeks each. This week I begin Cycle 4.

Velcade Chemo Cycle 3, Week 5Cycle 3 Week 5 Treatment

You can see my self-portraits and treatment photos on flickr. I’ve included some further thoughts on my experiences to date on YouTube:

I’m feeling great and staying positive.

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Cycle 3 Week 4 Chemo Treatment: In Photos

BC Cancer AgencyOn Tuesday May 21st, I headed to the BC Cancer Agency, so that I could receive radiation treatment. As I documented previously I had 4-5 weeks of severe back/side pain in Feb/Mar (bedridden, save for chemo treatment), which were later shown to be due to cancer cells in the T7 vertebrae of my thoracic spine, based on the results of my CT scan. This is just one of the possible side effects from multiple myeloma, which is a blood cancer. After a conversation with my specialist, it was determined that radiation treatment on that particular area would help prevent the pain from returning.

Vertebrae Orientation (T7 Vertebrae image via Wikipedia/Mikael Häggström). When I arrived I had mentally prepared myself for the radiation treatment, however when I saw the radiologist I learned that I would not be getting radiation on that day. The radiologist explained that my T7 vertebrae has collapsed because of the cancerous cells inside and that the severe pain I experienced was from the vertebrae collapsing. Once the vertebrae became flattened, the pain stopped. A still-circular vertebrae that causes pain due to cancerous cells inside can be treated with chemo or radiation (targeted chemo). Then cement is added to stabilize the walls of the vertebrae and prevent them from collapsing in the future.

Thoracic Vertebrae (Thoracic Vertebrae image via Wikipedia/Anatomist90). The radiologist believed that in my situation, my T7 vertebrae had already collapsed and was flat and stable. Therefore cement couldn’t be added to fix it and make it whole again. If the pain returned, then I would be able to receive radiation to kill the cancer cells and stop the pain. However, as chemo I’m presently taking should be killing cancer cells in my body everywhere including in my thoracic spine additional radiation directed at T7 vertebrae would be overkill.

After the meeting I was in a bit of a shock that I wouldn’t get radiation and nervous about the future. It is this big unknown hanging over me as I would when pain will return in the future as bone degradation and joint/bone pain are common with those living with multiple myeloma.

Waiting for chemo treatmentWaiting for Velcade chemo injections

At the end of the week I had my Velcade chemo treatment at the hospital. When I arrived I took my temperature, oxygen saturation, pulse, and blood pressure and put the results down on my chart. Then my nurse arrived to give me a CBC (complete blood count), which is a blood test that provides four main results that monitor how I’m responding to treatment.

CBC Results
White Blood Count 3.2 (normal 4-11)
Neutrophils 1.9 (normal 2-8)
Hemoglobin 117 (normal 135-170)
Blood Platelets 221 (normal 150-400)

While waiting for the results, my Velcade chemo arrived and I received two injections in the right side of my stomach. After it was over, I took the bus home. The next morning, I took this photo inside due to the light rain. This is composed of the dexamethasone and cyclophosphamide that I take weekly as part of my Velcade chemo treatment. As it is the 14th week of treatment, the pills are shaped into a 14.

Velcade chemo treatment: Cycle 3 Week 4 Cycle 3 Week 4 Treatment

I continue to use self-portraits to help with the healing process and allow me to maintain a positive outlook on life as cancer can be pretty lonely. The complete flickr set is here.

Relaxing May 23rd: Relaxing on the grass

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Cycle 3 Week 3 Chemo Treatment: In Photos

Velcade Chemo Treatment: Cycle 3, Week 3 Cycle 3 Week 3 Treatment

It was raining when I woke up to take this photo so I took it inside. This is composed of the dexamethasone and cyclophosphamide that I take weekly as part of my Velcade chemo treatment. As it is the 13th week of treatment, the pills are shaped into a 13.

CBC - Complete Blood Count

CBC – Complete Blood Count

At the hospital for my weekly Velcade chemo treatment, everything went according to plan. After self-reporting my temperature, oxygen saturation, pulse, and blood pressure, the nurse came to give me a CBC (complete blood count). That is a blood test that provides four main results that monitor how I’m responding to treatment. I also learned that for this third cycle, I would have a CBC each time I went for chemo treatment at the hospital.

While waiting for the results, my Velcade chemo arrived and I received two injections in the left side of my stomach. I always look away and imagine a happy place or happier times in my life.

CBC Results for May 17
White Blood Count 4.2 (normal 4-11)
Neutrophils 1.6 (normal 2-8)
Hemoglobin 116 (normal 135-170)
Blood Platelets 220 (normal 150-400)

After everything was over, I took the bus home – another trip to the hospital complete. Focused on positive thinking. I’m using self-portraits to help with the healing process and keep me happy about life. The complete flickr set is here.

Final rays of the dayMay 9th: Final rays of the day

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Cycle 3 Week 2 Chemo Treatment: A day in my life

Last Friday was Cycle 3 Week 2 of my treatment so I thought I would provide a synopsis of my day. When I woke up I knew I wanted to to take my daily self-portrait with my treatment pills before I left for the hospital and I felt it should be different than the typical bland photo I’d taken in the past. So, I walked around until I found a flower patch and decided it would serve as a nice backdrop.

Velcade chemo treatment: Cycle 3 Week 2 (12th week total)Cycle 3 Week 2 Treatment

I then took the bus to the hospital cancer ward where I checked in, found a room with a free chair, and took my blood pressure, temperature, pulse, and Oxygen Saturation. These numbers I then put on my chart, which the nurse looked at when she came by before she took a single vial of my blood (called a CBC – complete blood count), which measures my White Blood Cells, Neutrophils, Hemoglobin, and Blood Platelets. This particular blood test provides an ongoing monitoring of my response to chemo. About 30 minutes later I received my results which were good and normal in some cases.

To see results of WBC, hemoglobin, blood platelets, and neutrophils levels

To see results of WBC, hemoglobin, blood platelets, and neutrophils levels

White Blood Cells 4.2 (normal 4.5-10.0)
Neutrophils 4.0 (normal 2-7.5)
Hemoglobin 115 (normal 113-178)
Blood Platelets 240 (normal 150-440)

Velcade chemo treatment Cycle 3, Week 2: Waiting for my chemoWaiting for my chemo treatment

While I waited for the blood test results, the nurse came by to give me my chemo in needle form (140ml and 150ml). As this was the 2nd week, I received the injections in the right side of my stomach. I don’t like needles at all, so I always look away and take myself mentally to a happy place. After this was done, and I had received a small piece of paper with my counts (CBC results), I left the hospital to take the bus home. Another chemo experience done!

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Cancer Radiology Appointment set: Thoughts via text and soundcloud

Where does the road lead?What lies around the corner?

Soundcloud of my thoughts

When you have cancer, one of the big issues surrounding chemo treatment are the unknown side effects that will occur that seem to come out of left field. It can put challenges on working, socialising, and creating a familiar routine. Each time I’ve had chemo I have major side effects that have had a significant effect on my health and well-being. The first time I had chemo treatment (bone marrow transplant), I nearly got glaucoma. The third time, I came down with TTP, a rare blood disorder, and spent 12 days recovering in hospital. This time, the day after my chemo treatment began I developed severe back/side pain and I was bedridden for a month. This most recent negative experience I documented previously in a blogpost. A subsequent CT scan, showed that because I have multiple myeloma, cancer cells had spread to my thoracic spine, specifically the T7 and T9 vertebrae, meaning that radiation of that area would be necessary.

Today, I received a call from the Cancer Radiology department setting up an appointment for next week. They asked me a number of questions such as medication I’m on and who my next of kin was. Although it is suppose to be a fairly safe procedure, it still is an operation with certain risks. It will take about 3 hours in total and as I’m taking the bus (can’t drive due to a previous stroke caused by my TTP) I won’t need to worry about how I’m getting back to my place afterwards.

I’m staying positive that this radiation treatment will prevent cancer cells appearing on my thoracic spine ever again and make back or side pain due to my multiple myeloma less likely.

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Velcade chemo treatment: Cycle 3 begins

Last week not only did I have my specialist appointment (common after 2 cycles of Velcade), I had my weekly treatment of Velcade at the hospital. I was still feeling happy that my cancer levels (igG) had dropped from 62.2 to 19.0 based on my blood test at the beginning of Cycle 2. It meant that I was responding well to my chemo and that no change in my treatment would be needed at this time.

My 4th Chemo treatment is lowering my cancer levelsChemo is lowering my cancer levels

My Complete Blood Counts

My Complete Blood Counts

I hadn’t been to the hospital for two weeks (last week of each cycle is a “no Velcade week”) so it took a sec to remember that I had to check my blood pressure, temperature, etc. while waiting for the nurse. After I’d finished checking and writing down the results on my chart, the nurse came by to look at the results and to take my blood.

While waiting for some initial blood test results (referred to as counts), I received my two needles of Velcade chemo. It was painless and as usual I focused on positive thoughts to make the time go by faster. I then waited about 30 minutes to get my counts, which the nurse stated looked good. I left feeling great and happy that another chemo session was complete.

Cycle 3 Week 1: My 11th week of treatmentWeek 11 taking dexamethasone (steroid) and cyclophosphamide (chemo)

11 weeks down, 19 more to go!

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Cancer Specialist appointment: Good news and bad news

Yesterday I had my cancer specialist appointment. It was scheduled because I had completed 2 cycles (5 weeks each) of my Velcade chemo treatment. My chemo levels have lowered due to my treatment, but I will need to have radiation on the T7 vertebrae of my thoracic spine as there are multiple myeloma cells there that are causing havoc. These MM cells were responsible for the severe back/side pain I had over 4 weeks in February and March that kept me mostly bed-ridden.

Overall I’m staying positive, using my photography to help keep my mind off my cancer, and focused on remaining happy.

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Cycle 2 Chemo Treatment is Done

So happy to be done Cycle 2. Watch the video for my analysis of my Velcade chemo treatment to date. I have 4 more (5 weeks each) cycles to go. Staying positive, loving life!

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Velcade Chemo Treatment: My CT scan adventures

Soundcloud Storytelling

On Monday I went to the hospital to get a CT scan. In February and March I had severe back/side pain for about 4 weeks that coincided with the beginning of my Velcade chemo treatment. During this period I was bedridden on prescription pain-killers as I wondered whether this was related to my chemo treatment, cancer, or was just random. To better understand why this may have occurred, my cancer specialist ordered a CT scan of my thoracic spine.

When I arrived I was handed a questionnaire with some pertinent questions prior to the administration of I.V. contrast by the CT technician (e.g. Do you have any blood disorders such as multiple myeloma or sickle cell anaemia? Have you ever had a previous injection of contrast (X-Ray dye)?). For me, the answer to both questions was yes as I have multiple myeloma and spent 12 days in hospital in 2009 when I contracted TTP (a rare blood disorder) and suffered a stroke in my visual cortex. In order to assess the extend of the damage to my visual cortex, I had a CT scan at that time.

CT Scan: 22 Gauge IV needle + extension tubing with saline

After handing over my questionnaire, a CT technician tried to put an I.V. in my arm. I have had alot of blood tests and always use my left arm where there is a good vein. Unfortunately, this time there was difficulty and after multiple attempts by 2 different technicians in both arms (even warming my arms didn’t help), they called in someone I refer to as “The Wolf”. In Pulp Fiction “The Wolf” is a character that solves problems, in the hospital I was at, they are someone that solves problem I.V.s. This person has a pager and they are called when there are patients that have extremely difficult veins and repeated attempts at starting an I.V. have been unsuccessful. Thankfully my I.V. was started without any difficulty and I was led into the room with the CT machine.

CT scan: 22 Gauge IV needle + extension tubing

There I lay down on the bench with my arms extended behind my head. The technician injected the x-ray contrast (x-ray dye) into my I.V. as this fluid in necessary to enable my specialist to see in the x-ray images my blood flow and blood vessels more easily. The injection took about 5 minutes after which I was told to lie still while the machine took pictures of my thoracic spine.

My CT Scan: Siemens Somatom Sensation Cardiac 64

In five days my specialist will receive the images, although they are accessible if needed after about 10 minutes. Although the process took 90 min, I’m happy that it was done and I’m staying optimistic that I don’t have any permanent damage to my spine.

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